Twin boys Levi and Lucas have been denied a Cannabis based medicine Epidoilex which could help with their uncontrollable seizures.
After a report from Calendar parents Paul and Michael Atwal-Brice were called to Sheffield Children Hospital.
But it wasn’t the news they wanted to here. Instead of being offered the Cannabis drug they were given a medication that Levi had been on 10 years ago.
Levi was also offered VNS surgery but with only a 30% of working the family are apprehensive in going down that route.
Guidelines for Epidiolex states it should only be provided for a diagnosis of Dravet Syndrome or Lennox-Gastaut Syndrome and it’s unclear if the twins have been diagnosed with either.